posted on 2025-08-01, 16:58authored byS Stapley, C Pentecost, R Collins, C Quinn, E Dawson, JM Thom, L Clare
Family carers of people with dementia have reported increased caring demands during the COVID-19 pandemic. The aim of this qualitative study is to explore seven family carers’ accounts of dementia caregiving one year into the COVID-19 pandemic in England in relation to carer resilience. Themes describe the complex challenges of caring during the pandemic, with interviewees burned out and ‘caring beyond capacity’ due to unmet needs within the caring role, therein highlighting the limitations of building individual resilience only. Timely practical support for carers is essential to protect their well-being and to ward against the potential consequences of carer burnout.
Funding
348, AS-PR2-16-001
Alzheimer’s Society
ES/L001853/2
ES/V004964/1
Economic and Social Research Council (ESRC)
National Institute for Health and Care Research (NIHR)
This is the author accepted manuscript. The final version is available from Bristol University Press via the DOI in this record
Data availability: INCLUDE data were deposited with the UK data archive in June 2022 and will be available to access from July 2023. Details of how the data can be accessed after that date can be found here: https://reshare.ukdataservice.ac.uk/855800/