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"I ask them what autism means for them": a qualitative study of staff experiences of working with autistic women and birthing people in community perinatal mental health teams.

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posted on 2025-10-30, 09:50 authored by Verity WestgateVerity Westgate, C Thompson, D Caramaschi, G O'Mahen
<p dir="ltr">Background: Autistic women and birthing people (AWBP) face an increased risk of perinatal mental health issues and may be referred to Community Perinatal Mental Health Teams (CPMHTs). However, staff members of CPMHTs often lack sufficient training and knowledge about autism, leading to barriers in providing appropriate care. To date, no studies have examined the experiences of staff supporting autistic women and birthing people within CPMHTs. </p><p dir="ltr">Methods: We carried out individual qualitative interviews with 20 staff members from different professional backgrounds across four CPMHTs in England to understand their experiences working with AWBP and to identify how CPMHTs could better meet their needs. Thematic analysis was used to synthesise findings. </p><p dir="ltr">Results: We identified four key themes: (1) recognizing the complexities of AWBP, (2) addressing the unique needs of AWBP (3) varying levels of knowledge and understanding across both the CPMHTs and individual clinicians, and (4) envisioning improvements for the future. Staff reported that working with AWBP was an unexpected aspect of their roles, further complicated by difficulties in accessing autism assessments for those who had not yet received a formal diagnosis. They highlighted both barriers to providing appropriate care and the adjustments they could make to improve their practice. Additionally, staff expressed a need for targeted training and suggested other areas for development, including appointing an autism champion, employing autistic peer support workers, and involving individuals with lived experience of autism and perinatal mental health challenges in co-producing service improvements. </p><p dir="ltr">Conclusions: Working with AWBP is a current area of challenge for CPMHTs. Perinatal-focused autism training and expert supervision are important for staff to feel confident in making appropriate adaptions to care to provide the best possible support.</p>

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    ISSN - Is published in 1471-244X (BMC Psychiatry)

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© 2025 The Authors. Open Access. This article is licensed under a Creative Commons Attribution 4.0 International License, which permits use, sharing, adaptation, distribution and reproduction in any medium or format, as long as you give appropriate credit to the original author(s) and the source, provide a link to the Creative Commons licence, and indicate if changes were made. The images or other third party material in this article are included in the article’s Creative Commons licence, unless indicated otherwise in a credit line to the material. If material is not included in the article’s Creative Commons licence and your intended use is not permitted by statutory regulation or exceeds the permitted use, you will need to obtain permission directly from the copyright holder. To view a copy of this licence, visit http://creativecommons.org/licenses/by/4.0/.

Submission date

2025-03-11

Notes

This is the final version. Available from BioMed Central via the DOI in this record. Data availability: The data that support the findings of this study are not openly available due to reasons of confidentiality and are available from the corresponding author upon reasonable request.

Journal

BMC Psychiatry

Volume

25

Article Number

1024

Publisher

BioMed Central

Location

England

Version

  • Version of Record

Language

en

Department

  • Psychology

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