Young people and healthcare. Part 2: Experience of long term health conditions

Abstract

The aim of this study is to provide a qualitative perspective of young peoples’ experiences of long term illness. Three young people were interviewed and participated in making film diaries about their experiences of living with a long term illness. The interview transcripts were then analysed using thematic analysis. Four main themes were identified to represent common shared experiences across participants. These related to coping, the impact of illness on various aspects of life, experiences of healthcare, and transitions from pediatric to adult services. While significant efforts are being made to increase knowledge and understanding of the experiences of long term illness within the child and adolescent population there is still much to be learned, as is evident from this direct account of young peoples’ experiences. We identify implications for clinical practice and suggestions for future research in light of listening to the young peoples’ stories.