The relationship between perceived functional difficulties and the ability to live well with mild-to-moderate dementia: findings from the IDEAL study
dc.contributor.author | Martyr, A | |
dc.contributor.author | Nelis, SM | |
dc.contributor.author | Quinn, C | |
dc.contributor.author | Rusted, JM | |
dc.contributor.author | Morris, RG | |
dc.contributor.author | Clare, L | |
dc.contributor.author | IDEAL study team | |
dc.date.accessioned | 2019-05-20T10:35:24Z | |
dc.date.issued | 2019-04-29 | |
dc.description.abstract | OBJECTIVES: The objectives of the study are to investigate how different levels of functional ability relate to quality of life, well-being and satisfaction with life, conceptualised as reflecting capability to 'live well', in people with dementia. METHODS/DESIGN: Participants were 1496 people with mild-to-moderate dementia and 1188 informants who completed baseline assessments in the IDEAL cohort study. Total self-rated and informant-rated scores on the Functional Activities Questionnaire were split into six ability levels to monitor how poorer functioning impacts the ability to live well. We also investigated the potential influence of sociodemographic and diagnostic variables, depression, cognition and carer stress. RESULTS: Multivariate multiple regression models found that people with dementia who had the greatest functional impairment according to self- and informant ratings had poorer living well scores than those with the least functional impairment. Sociodemographic and diagnostic factors and cognition had little impact on effect sizes. For self-ratings, depression attenuated the relationship between functional ability and living well, whereas carer stress attenuated informant ratings. CONCLUSIONS: People with dementia with the least functional impairments had greater capability to 'live well' than those with the most functional impairment. Even subtle perceived difficulties in functional ability had a detrimental effect on the ability of people with dementia to live well. Depression in people with dementia and carer stress in informants influenced these associations and therefore these factors should be routinely included in future research studies and clinical assessments. | en_GB |
dc.description.sponsorship | Economic and Social Research Council (ESRC) | en_GB |
dc.description.sponsorship | National Institute for Health Research & Economic | en_GB |
dc.identifier.citation | Vol. 34, pp. 1251–1261 | en_GB |
dc.identifier.doi | 10.1002/gps.5128 | |
dc.identifier.grantnumber | ES/L001853/2 | en_GB |
dc.identifier.uri | http://hdl.handle.net/10871/37147 | |
dc.language.iso | en | en_GB |
dc.publisher | Wiley for International College of Geriatric Psychoneuropharmacology | en_GB |
dc.relation.url | https://www.ncbi.nlm.nih.gov/pubmed/31034650 | en_GB |
dc.rights | © 2019 The Authors. International Journal of Geriatric Psychiatry Published by John Wiley & Sons Ltd. This is an open access article under the terms of the Creative Commons Attribution License, which permits use, distribution and reproduction in any medium, provided the original work is properly cited. | en_GB |
dc.subject | Alzheimer's disease | en_GB |
dc.subject | activities of daily living | en_GB |
dc.subject | carer stress | en_GB |
dc.subject | depression | en_GB |
dc.subject | quality of life | en_GB |
dc.title | The relationship between perceived functional difficulties and the ability to live well with mild-to-moderate dementia: findings from the IDEAL study | en_GB |
dc.type | Article | en_GB |
dc.date.available | 2019-05-20T10:35:24Z | |
dc.identifier.issn | 0885-6230 | |
exeter.place-of-publication | England | en_GB |
dc.description | This is the final version. Available on open access from Wiley via the DOI in this record. | en_GB |
dc.identifier.journal | International Journal of Geriatric Psychiatry | en_GB |
dc.rights.uri | https://creativecommons.org/licenses/by/4.0/ | en_GB |
dcterms.dateAccepted | 2019-04-19 | |
exeter.funder | ::Economic and Social Research Council (ESRC) | en_GB |
rioxxterms.version | VoR | en_GB |
rioxxterms.licenseref.startdate | 2019-04-29 | |
rioxxterms.type | Journal Article/Review | en_GB |
refterms.dateFCD | 2019-05-20T10:32:54Z | |
refterms.versionFCD | VoR | |
refterms.dateFOA | 2019-05-20T10:35:30Z | |
refterms.panel | A | en_GB |
Files in this item
This item appears in the following Collection(s)
Except where otherwise noted, this item's licence is described as © 2019 The Authors. International Journal of Geriatric Psychiatry Published by John Wiley & Sons Ltd. This is an open access article under the terms of the Creative Commons Attribution License, which permits use, distribution and reproduction in any medium, provided the original work is properly cited.