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dc.contributor.authorAlexander, CM
dc.contributor.authorMartyr, A
dc.contributor.authorSavage, SA
dc.contributor.authorMorris, RG
dc.contributor.authorClare, L
dc.date.accessioned2020-06-19T15:24:22Z
dc.date.issued2020-05-13
dc.description.abstractBackground: Awareness of the diagnosis or related changes in functioning varies in people with dementia (PwD), with implications for the well-being of PwD and their carers. Measuring awareness in a clinical setting could facilitate tailored support and optimize involvement in personal health and care decisions. This scoping review aimed to identify validated methods of assessing awareness in dementia and appraise their clinical utility. Method: A systematic search was conducted of English-language publications that measured awareness in PwD, in 6 electronic databases. Search terms included dement*, Alzheimer*, Pick disease, and awareness, unawareness, anosognosia, insight, denial, metacognit*, or discrepanc*. Results: We screened 30,634 articles, finding 345 articles that met our inclusion criteria. We identified 76 measures, most commonly using a discrepancy questionnaire comparing evaluations of function by PwD and an informant. There were 30 awareness measures developed and validated for use in dementia populations but few designed for general clinical use. Conclusions: Although we found a range of clinical indications for measuring awareness, there were few studies investigating clinical applications and few tools designed for clinical purposes. Further investigation and development of a person-centered tool could facilitate health and care choices in mild-to-moderate dementia.en_GB
dc.description.sponsorshipAlzheimer’s Societyen_GB
dc.identifier.citationPublished online 13 May 2020en_GB
dc.identifier.doi10.1177/0891988720924717
dc.identifier.grantnumberAS-CP-17-001en_GB
dc.identifier.urihttp://hdl.handle.net/10871/121545
dc.language.isoenen_GB
dc.publisherSAGE Publicationsen_GB
dc.rights© The Author(s) 2020. Open access. This article is distributed under the terms of the Creative Commons Attribution-NonCommercial 4.0 License (https://creativecommons.org/licenses/by-nc/4.0/) which permits non-commercial use, reproduction and distribution of the work without further permission provided the original work is attributed as specified on the SAGE and Open Access pages (https://us.sagepub.com/en-us/nam/open-access-at-sage).en_GB
dc.subjectAlzheimeren_GB
dc.subjectanosognosiaen_GB
dc.subjectinsighten_GB
dc.subjectdenialen_GB
dc.subjectclinical toolen_GB
dc.subjectperson-centered careen_GB
dc.titleMeasuring Awareness in People With Dementia: Results of a Systematic Scoping Reviewen_GB
dc.typeArticleen_GB
dc.date.available2020-06-19T15:24:22Z
dc.identifier.issn0891-9887
dc.descriptionThis is the final version. Available on open access from SAGE Publications via the DOI in this recorden_GB
dc.identifier.journalJournal of Geriatric Psychiatry and Neurologyen_GB
dc.rights.urihttps://creativecommons.org/licenses/by-nc/4.0/en_GB
dcterms.dateAccepted2020-04-06
rioxxterms.versionVoRen_GB
rioxxterms.licenseref.startdate2020-04-06
rioxxterms.typeJournal Article/Reviewen_GB
refterms.dateFCD2020-06-19T15:21:56Z
refterms.versionFCDVoR
refterms.dateFOA2020-06-19T15:24:26Z
refterms.panelAen_GB


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© The Author(s) 2020. Open access. This article is distributed under the terms of the Creative Commons Attribution-NonCommercial 4.0 License (https://creativecommons.org/licenses/by-nc/4.0/) which permits non-commercial use, reproduction and distribution of the work without further permission provided the original work is attributed as specified on the SAGE and Open Access pages (https://us.sagepub.com/en-us/nam/open-access-at-sage).
Except where otherwise noted, this item's licence is described as © The Author(s) 2020. Open access. This article is distributed under the terms of the Creative Commons Attribution-NonCommercial 4.0 License (https://creativecommons.org/licenses/by-nc/4.0/) which permits non-commercial use, reproduction and distribution of the work without further permission provided the original work is attributed as specified on the SAGE and Open Access pages (https://us.sagepub.com/en-us/nam/open-access-at-sage).