Assessing the outcomes and experiences of care from the perspective of people living with chronic conditions, to support countries in developing people-centred policies and practices: study protocol of the International Survey of People Living with Chronic Conditions (PaRIS survey).
dc.contributor.author | de Boer, D | |
dc.contributor.author | van den Berg, M | |
dc.contributor.author | Ballester, M | |
dc.contributor.author | Bloemeke, J | |
dc.contributor.author | Boerma, W | |
dc.contributor.author | de Bienassis, K | |
dc.contributor.author | Groenewegen, P | |
dc.contributor.author | Groene, O | |
dc.contributor.author | Kendir, C | |
dc.contributor.author | Klazinga, N | |
dc.contributor.author | Porter, I | |
dc.contributor.author | Sunol, R | |
dc.contributor.author | Thomas, L | |
dc.contributor.author | Valderas, JM | |
dc.contributor.author | Williams, R | |
dc.contributor.author | Rijken, M | |
dc.date.accessioned | 2022-09-26T14:04:45Z | |
dc.date.issued | 2022-09-19 | |
dc.date.updated | 2022-09-26T13:52:25Z | |
dc.description.abstract | INTRODUCTION: In view of growing populations with chronic conditions, many countries are redesigning their health systems. However, little information is available about how health systems perform from the perspective of people living with chronic conditions. The Organisation for Economic Co-operation and Development (OECD) Member States therefore mandated the OECD to initiate the International Survey of People Living with Chronic Conditions (PaRIS survey), which aims to provide insight in outcomes and experiences of care as reported by people living with chronic conditions. The PaRIS-SUR consortium has been tasked by the OECD to support the development and implementation of the survey. METHODS AND ANALYSIS: As primary care services play a pivotal role in the management of chronic conditions, the PaRIS survey will be implemented in the primary care setting. Data will be collected with a survey among users of primary care services aged 45 years or older, of whom many have chronic conditions. An additional survey is conducted among their primary care providers. The nested study design will allow analysis of the patient-reported data in relation to characteristics of and care provided by primary care providers within and across countries. In 2022, the survey will be tested in a Field Trial in participating countries. Data for cross-country comparison will be collected by the Main Survey in 2023. ETHICS AND DISSEMINATION: Informed consent will be obtained from primary care providers and service users. National Project Managers search ethical approval of the survey in their country, if required. Reporting by the OECD will focus on questions for international comparison. A secured information technology platform will be developed for participants and stakeholders in countries to receive feedback and answer their own questions. Findings will also be disseminated through an international OECD flagship report, conferences, scientific papers and policy briefs, to inform strategies to improve care for people living with chronic conditions throughout the world. | en_GB |
dc.description.sponsorship | Organisation for Economic Co-operation and Development (OECD) | en_GB |
dc.format.extent | e061424- | |
dc.identifier.citation | Vol. 12, No. 9, article e061424 | en_GB |
dc.identifier.doi | https://doi.org/10.1136/bmjopen-2022-061424 | |
dc.identifier.uri | http://hdl.handle.net/10871/130974 | |
dc.identifier | ORCID: 0000-0002-2440-8727 (Porter, Ian) | |
dc.language.iso | en | en_GB |
dc.publisher | BMJ Publishing | en_GB |
dc.relation.url | https://www.ncbi.nlm.nih.gov/pubmed/36123114 | en_GB |
dc.rights | © Author(s) (or their employer(s)) 2022. Re-use permitted under CC BY-NC. No commercial re-use. See rights and permissions. Published by BMJ. http://creativecommons.org/licenses/by-nc/4.0/ This is an open access article distributed in accordance with the Creative Commons Attribution Non Commercial (CC BY-NC 4.0) license, which permits others to distribute, remix, adapt, build upon this work non-commercially, and license their derivative works on different terms, provided the original work is properly cited, appropriate credit is given, any changes made indicated, and the use is non-commercial. See: http://creativecommons.org/licenses/by-nc/4.0/. | en_GB |
dc.subject | health policy | en_GB |
dc.subject | international health services | en_GB |
dc.subject | organisation of health services | en_GB |
dc.subject | quality in health care | en_GB |
dc.title | Assessing the outcomes and experiences of care from the perspective of people living with chronic conditions, to support countries in developing people-centred policies and practices: study protocol of the International Survey of People Living with Chronic Conditions (PaRIS survey). | en_GB |
dc.type | Article | en_GB |
dc.date.available | 2022-09-26T14:04:45Z | |
dc.identifier.issn | 2044-6055 | |
exeter.place-of-publication | England | |
dc.description | This is the final version. Available from BMJ Publishing via the DOI in this record. | en_GB |
dc.identifier.journal | BMJ Open | en_GB |
dc.relation.ispartof | BMJ Open, 12(9) | |
dc.rights.uri | http://creativecommons.org/licenses/by-nc/4.0/ | en_GB |
dcterms.dateAccepted | 2022-08-31 | |
rioxxterms.version | VoR | en_GB |
rioxxterms.licenseref.startdate | 2022-09-19 | |
rioxxterms.type | Journal Article/Review | en_GB |
refterms.dateFCD | 2022-09-26T14:01:37Z | |
refterms.versionFCD | VoR | |
refterms.dateFOA | 2022-09-26T14:05:00Z | |
refterms.panel | A | en_GB |
refterms.dateFirstOnline | 2022-09-19 |
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This is an open access article distributed in accordance with the Creative Commons Attribution Non Commercial (CC BY-NC 4.0) license, which permits others to distribute, remix, adapt, build upon this work non-commercially, and license their derivative works on different terms, provided the original work is properly cited, appropriate credit is given, any changes made indicated, and the use is non-commercial. See: http://creativecommons.org/licenses/by-nc/4.0/.