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‘Caring beyond capacity’ during the COVID-19 pandemic: resilience and family carers of people with dementia from the IDEAL cohort

dc.contributor.authorStapley, S
dc.contributor.authorPentecost, C
dc.contributor.authorCollins, R
dc.contributor.authorQuinn, C
dc.contributor.authorDawson, E
dc.contributor.authorThom, JM
dc.contributor.authorClare, L
dc.date.accessioned2023-06-06T08:59:38Z
dc.date.issued2023-05-22
dc.date.updated2023-06-05T21:33:37Z
dc.description.abstractFamily carers of people with dementia have reported increased caring demands during the COVID-19 pandemic. The aim of this qualitative study is to explore seven family carers’ accounts of dementia caregiving one year into the COVID-19 pandemic in England in relation to carer resilience. Themes describe the complex challenges of caring during the pandemic, with interviewees burned out and ‘caring beyond capacity’ due to unmet needs within the caring role, therein highlighting the limitations of building individual resilience only. Timely practical support for carers is essential to protect their well-being and to ward against the potential consequences of carer burnout.en_GB
dc.description.sponsorshipEconomic and Social Research Council (ESRC)en_GB
dc.description.sponsorshipAlzheimer’s Societyen_GB
dc.description.sponsorshipNational Institute for Health and Care Research (NIHR)en_GB
dc.format.extent1-18
dc.identifier.citationPublished online 22 May 2023en_GB
dc.identifier.doihttps://doi.org/10.1332/239788221x16819328227036
dc.identifier.grantnumberES/V004964/1en_GB
dc.identifier.grantnumberES/L001853/2en_GB
dc.identifier.grantnumber348, AS-PR2-16-001en_GB
dc.identifier.urihttp://hdl.handle.net/10871/133300
dc.language.isoenen_GB
dc.publisherBristol University Pressen_GB
dc.relation.urlhttps://reshare.ukdataservice.ac.uk/855800/en_GB
dc.rights© Policy Press 2023. For the purpose of open access, the authors have applied a Creative Commons Attribution (CC BY) licence to any Author Accepted Manuscript version arising.en_GB
dc.subjectAcquired Cognitive Impairmenten_GB
dc.subjectDementiaen_GB
dc.subjectBrain Disordersen_GB
dc.subjectNeurologicalen_GB
dc.title‘Caring beyond capacity’ during the COVID-19 pandemic: resilience and family carers of people with dementia from the IDEAL cohorten_GB
dc.typeArticleen_GB
dc.date.available2023-06-06T08:59:38Z
dc.identifier.issn2397-8821
dc.descriptionThis is the author accepted manuscript. The final version is available from Bristol University Press via the DOI in this recorden_GB
dc.descriptionData availability: INCLUDE data were deposited with the UK data archive in June 2022 and will be available to access from July 2023. Details of how the data can be accessed after that date can be found here: https://reshare.ukdataservice.ac.uk/855800/en_GB
dc.identifier.eissn2397-883X
dc.identifier.journalInternational Journal of Care and Caringen_GB
dc.relation.ispartofInternational Journal of Care and Caring
dc.rights.urihttps://creativecommons.org/licenses/by/4.0/en_GB
dcterms.dateAccepted2023-04-19
rioxxterms.versionAMen_GB
rioxxterms.licenseref.startdate2023-05-22
rioxxterms.typeJournal Article/Reviewen_GB
refterms.dateFCD2023-06-06T08:53:28Z
refterms.versionFCDAM
refterms.dateFOA2023-06-06T08:59:39Z
refterms.panelAen_GB


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© Policy Press 2023. For the purpose of open access, the authors have applied a Creative Commons Attribution (CC BY) licence to any Author Accepted Manuscript version arising.
Except where otherwise noted, this item's licence is described as © Policy Press 2023. For the purpose of open access, the authors have applied a Creative Commons Attribution (CC BY) licence to any Author Accepted Manuscript version arising.