Navigating the COVID-19 pandemic two years on: experiences of carers of people with dementia from the British IDEAL cohort
dc.contributor.author | Collins, R | |
dc.contributor.author | Dawson, E | |
dc.contributor.author | Pentecost, C | |
dc.contributor.author | Stapley, S | |
dc.contributor.author | Quinn, C | |
dc.contributor.author | Charlwood, C | |
dc.contributor.author | Allan, L | |
dc.contributor.author | Victor, C | |
dc.contributor.author | Clare, L | |
dc.date.accessioned | 2023-08-01T08:48:32Z | |
dc.date.issued | 2023-08-29 | |
dc.date.updated | 2023-07-31T16:26:25Z | |
dc.description.abstract | We explored carers experiences during the COVID-19 pandemic in England to identify long-term impacts and implications, and to suggest future support for caregivers. Data were collected during COVID-19 rapid response studies (IDEAL-CDI; INCLUDE) from carers participating in a British longitudinal cohort study (IDEAL). Semi-structured interview data were compared to their accounts from previous interviews conducted during the first 18 months of the pandemic. There was indication of some return to pre-pandemic lifestyles but without appropriate support carers risked reaching crisis point. Evidence points to a need for assessment and management of support needs to ensure well-being and sustainable dementia caregiving. | en_GB |
dc.description.sponsorship | Economic and Social Research Council (ESRC) | en_GB |
dc.description.sponsorship | National Institute for Health and Care Research (NIHR) | en_GB |
dc.description.sponsorship | Alzheimer’s Society | en_GB |
dc.identifier.citation | Published online 29 August 2023 | en_GB |
dc.identifier.doi | https://doi.org/10.1332/239788223X16893442145108 | |
dc.identifier.grantnumber | ES/V004964/1 | en_GB |
dc.identifier.grantnumber | ES/L001853/2 | en_GB |
dc.identifier.grantnumber | 348, AS-PR2-16-001 | en_GB |
dc.identifier.uri | http://hdl.handle.net/10871/133677 | |
dc.identifier | ORCID: 0000-0003-2048-5538 (Pentecost, Claire) | |
dc.language.iso | en | en_GB |
dc.publisher | Bristol University Press | en_GB |
dc.relation.url | https://reshare.ukdataservice.ac.uk/854293 | en_GB |
dc.relation.url | https://reshare.ukdataservice.ac.uk/855800/ | en_GB |
dc.rights | © 2023. This version is made available under the CC-BY 4.0 license: https://creativecommons.org/licenses/by/4.0/ | en_GB |
dc.subject | COVID | en_GB |
dc.subject | qualitative | en_GB |
dc.subject | care services | en_GB |
dc.subject | quality of life | en_GB |
dc.title | Navigating the COVID-19 pandemic two years on: experiences of carers of people with dementia from the British IDEAL cohort | en_GB |
dc.type | Article | en_GB |
dc.date.available | 2023-08-01T08:48:32Z | |
dc.identifier.issn | 2397-8821 | |
dc.contributor | Pentecost, CL | |
dc.description | This is the author accepted manuscript. The final version is available from Bristol University Press via the DOI in this record | en_GB |
dc.description | Data access statement: IDEAL data were deposited with the UK data archive in April 2020. Details of how the data can be accessed after that date can be found here: https://reshare.ukdataservice.ac.uk/854293. INCLUDE data were deposited with the UK data archive in June 2022 and will be available to access from July 2023. Details of how the data can be accessed after that date can be found here: https://reshare.ukdataservice.ac.uk/855800/ | en_GB |
dc.description | NOTE the slight change of title between the author accepted manuscript in this record and the published version. The record title is the same as the published version | |
dc.identifier.journal | International Journal of Care and Caring | en_GB |
dc.rights.uri | https://creativecommons.org/licenses/by/4.0/ | en_GB |
dcterms.dateAccepted | 2023-07-11 | |
dcterms.dateSubmitted | 2022-08-16 | |
rioxxterms.version | AM | en_GB |
rioxxterms.licenseref.startdate | 2023-07-11 | |
rioxxterms.type | Journal Article/Review | en_GB |
refterms.dateFCD | 2023-07-31T16:26:28Z | |
refterms.versionFCD | AM | |
refterms.dateFOA | 2023-09-15T14:28:49Z | |
refterms.panel | A | en_GB |
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