Parent-carer experiences using a peer support network: a qualitative study
dc.contributor.author | Gudka, R | |
dc.contributor.author | Kelman, C | |
dc.contributor.author | Bryant, E | |
dc.contributor.author | Farooq, B | |
dc.contributor.author | Berry, V | |
dc.contributor.author | Bjornstad, G | |
dc.contributor.author | Martin, F | |
dc.contributor.author | Glover, S-L | |
dc.contributor.author | Russell, A | |
dc.date.accessioned | 2023-10-17T08:33:20Z | |
dc.date.issued | 2023-10-16 | |
dc.date.updated | 2023-10-16T15:31:55Z | |
dc.description.abstract | Introduction Parent-carers of children and young people (CYP) with mental health problems are at greater risk of poor outcomes, such as poor physical and mental health. Peer interventions for parent-carers of CYP with disabilities may improve parent-carer outcomes. This qualitative study investigates parent-carer experiences of using Parental Minds (PM), a multi-component peer support service for parent-carers of CYP with disabilities. Methods Twelve current service-users and four staff/volunteers at PM participated in one-to-one semi-structured interviews. All participants were white females, except for one service-user who was male. All interviews were recorded and transcribed verbatim. Thematic analysis of results was used to explore perceived benefits and disadvantages of PM and possible behaviour change mechanisms. Results Three themes and eight subthemes were identified. Participants identified that internal and external factors influence their self-concept. The identification of themselves as a priority, and empowerment by reassurance and affirmation lead to improved parent-carer self-efficacy and agency to better care for their CYP. Participants described the difficulty of speaking honestly with friends and family about what they experience because it is perceived as different to what “normal” parents experience. From participant accounts, PM enables the construction of a support network and links external services to help manage family circumstances rather than offer curative treatment/intervention. Proactive and immediate advice which is constantly and consistently available was valued by participants. Participants expressed the need for a flexible range of service components which provide holistic support that encompasses both health and social care. Conclusions PM was perceived to be beneficial as a multi-component peer support service which increases parenting self-efficacy and empowerment, reduces isolation, improves access to services, and is tailored to individual needs. Parent-carers reported benefits in parenting and wellbeing practices. The development of a refined logic model will inform a future study of the effectiveness of PM on parent-carer outcomes. | en_GB |
dc.identifier.citation | Vol. 23, article 2007 | en_GB |
dc.identifier.doi | https://doi.org/10.1186/s12889-023-16666-9 | |
dc.identifier.uri | http://hdl.handle.net/10871/134269 | |
dc.identifier | ORCID: 0000-0002-2903-6264 (Russell, Abigail) | |
dc.language.iso | en | en_GB |
dc.publisher | BMC | en_GB |
dc.rights | © The Author(s) 2023. Open Access. This article is licensed under a Creative Commons Attribution 4.0 International License, which permits use, sharing, adaptation, distribution and reproduction in any medium or format, as long as you give appropriate credit to the original author(s) and the source, provide a link to the Creative Commons licence, and indicate if changes were made. The images or other third party material in this article are included in the article’s Creative Commons licence, unless indicated otherwise in a credit line to the material. If material is not included in the article’s Creative Commons licence and your intended use is not permitted by statutory regulation or exceeds the permitted use, you will need to obtain permission directly from the copyright holder. To view a copy of this licence, visit http://creativecommons.org/licenses/by/4.0/. The Creative Commons Public Domain Dedication waiver (http://creativecommons.org/publicdomain/zero/1.0/) applies to the data made available in this article, unless otherwise stated in a credit line to the data | en_GB |
dc.subject | Holistic care | en_GB |
dc.subject | Wellbeing | en_GB |
dc.subject | Behaviour change intervention | en_GB |
dc.subject | Peer support | en_GB |
dc.subject | Parents | en_GB |
dc.subject | Carers | en_GB |
dc.subject | Qualitative | en_GB |
dc.subject | Mechanisms | en_GB |
dc.title | Parent-carer experiences using a peer support network: a qualitative study | en_GB |
dc.type | Article | en_GB |
dc.date.available | 2023-10-17T08:33:20Z | |
dc.identifier.issn | 1471-2458 | |
dc.description | This is the final version. Available on open access from BMC via the DOI in this record | en_GB |
dc.description | Availability of data and materials: The datasets generated and/or analysed during the current study are not publicly available to maintain the privacy of participants but are available from the corresponding author on reasonable request. | en_GB |
dc.identifier.journal | BMC Public Health | en_GB |
dc.relation.ispartof | BMC Public Health | |
dc.rights.uri | https://creativecommons.org/licenses/by/4.0/ | en_GB |
dcterms.dateAccepted | 2023-08-30 | |
dcterms.dateSubmitted | 2023-03-30 | |
rioxxterms.version | VoR | en_GB |
rioxxterms.licenseref.startdate | 2023-08-30 | |
rioxxterms.type | Journal Article/Review | en_GB |
refterms.dateFCD | 2023-10-16T15:31:57Z | |
refterms.versionFCD | P | |
refterms.dateFOA | 2023-10-17T08:33:23Z | |
refterms.panel | A | en_GB |
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regulation or exceeds the permitted use, you will need to obtain permission directly from the copyright holder. To view a copy of this
licence, visit http://creativecommons.org/licenses/by/4.0/. The Creative Commons Public Domain Dedication waiver (http://creativecommons.org/publicdomain/zero/1.0/) applies to the data made available in this article, unless otherwise stated in a credit line to the data