Culturally sensitive neonatal palliative care: a critical review

Abstract

Although there are known disparities in neonatal and perinatal deaths across cultural groups, less is known about how cultural diversity impacts neonatal palliative care. This paper critically reviews available literature and sets out key questions that need to be addressed in order to enhance neonatal palliative care provision for culturally diverse families. We begin by critically reviewing the challenges to recording, categorising, and understanding data which need to be addressed to enable a true reflection of the health disparities in neonatal mortality. We then consider whose voices frame the current neonatal palliative care agenda, and, importantly, whose perspectives are missing; what this means in terms of limiting current understanding; and how the inclusion of diverse perspectives can potentially help address current inequities in service provision. Utilising these insights, we make recommendations towards setting a research agenda, including key areas for future enquiry and methodological and practice-based considerations.