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dc.contributor.authorHillman, A
dc.contributor.authorJones, IR
dc.contributor.authorQuinn, C
dc.contributor.authorNelis, SM
dc.contributor.authorClare, L
dc.date.accessioned2018-01-29T11:36:03Z
dc.date.issued2018-04-16
dc.description.abstractThe concept of ‘narrative economies’ has recently been proposed as a set of exchange relationships that, through biography and story-telling, facilitate access to resources and act as a source of value. We utilise this concept to inform our analysis of 18 qualitative interviews with 5 people with dementia and 4 informal carers. Our participants are members of a pre-existing group of dementia advocates, representing the voices of those living with the condition. There are a growing number of people in the early stages of dementia - like our participants - being called upon to account for their experience, as a means of developing a politicised ‘collective illness identity’. These interviews present an opportunity to study a group of people who are actively involved in speaking as, and for, people with dementia. Four themes emerged from the data: becoming a voice of or for people with dementia; biographical reinforcement; responsibilisation; and resistance. These themes illustrate the ways in which people with dementia participate in their own identity construction and, as representatives of those living with dementia, they also illustrate the ways in which illness narratives produce material and symbolic value.en_GB
dc.identifier.citationPublished online 16 April 2018.en_GB
dc.identifier.doi10.1111/1467-9566.12729
dc.identifier.urihttp://hdl.handle.net/10871/31220
dc.language.isoenen_GB
dc.publisherWileyen_GB
dc.rights.embargoreasonUnder embargo until 16 April 2019 in compliance with publisher policy.en_GB
dc.rights© 2018 The Authors. Sociology of Health & Illness published by John Wiley & Sons Ltd on behalf of Foundation for SHIL. This is an open access article under the terms of the Creative Commons Attribution License (http://creativecommons.org/licenses/by/4.0/), which permits use, distribution and reproduction in any medium, provided the original work is properly cited.
dc.subjectAdvocacyen_GB
dc.subjectAlzheimer’s diseaseen_GB
dc.subjectcarersen_GB
dc.subjectillness narrativesen_GB
dc.subjectliving wellen_GB
dc.subjectnarrative economiesen_GB
dc.titleDualities of dementia illness narratives and their role in a narrative economyen_GB
dc.typeArticleen_GB
dc.identifier.issn0141-9889
dc.descriptionThis is the author accepted manuscript. The final version is available from Wiley via the DOI in this record.en_GB
dc.identifier.journalSociology of Health and Illnessen_GB


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