dc.contributor.author | Shankar, R | |
dc.contributor.author | Rowe, C | |
dc.contributor.author | Van Hoorne, A | |
dc.contributor.author | Henley, W | |
dc.contributor.author | Laugharne, R | |
dc.contributor.author | Cox, D | |
dc.contributor.author | Pande, R | |
dc.contributor.author | Roy, A | |
dc.contributor.author | Sander, JW | |
dc.date.accessioned | 2018-06-28T10:43:43Z | |
dc.date.issued | 2018-06-21 | |
dc.description.abstract | Purpose
One quarter of people with epilepsy have an intellectual disability (ID) and one fifth of people with an ID have epilepsy. Both conditions are associated with higher levels of morbidity, stigma and premature mortality. There have been calls for action to promote more research in this group. We examined if this group are represented adequately in current research.
Methods
The proportion of research output in epilepsy conferences and publications relevant to ID and the proportion in ID conferences and publications on epilepsy for 2015–2016 were identified. As the percentage of children in the population with epilepsy is 17%, research output of this group was compared with the ID group. Recognised material was classified based on whether it applied to general epilepsy/ID research, children with epilepsy or people with epilepsy and ID. Data was analysed to determine the proportion of presented research specifically identifying people with epilepsy and ID.
Results
Fewer than 2% of presentations at epilepsy conferences specifically related to the ID and epilepsy group compared to 15% relating to children with epilepsy. Similarly only 1.4% of the research presented at major ID conferences related to those with people with epilepsy and ID. About 5% of published research in the field of epilepsy related to those with ID as compared with 24% for children with epilepsy. Twelve percent of published research in ID specifically identified epilepsy.
Conclusion
Publications and conference presentations, on the population with epilepsy and comorbid ID is under-represented. Increased research in this area might assist in improving the quality of care for this relatively neglected group. | en_GB |
dc.description.sponsorship | JWS has received departmental research
support from GSK, Eisai Co. and UCB Pharma. RS
has received research support from UCB, Eisai Co.,
Special Products, LivaNova and Desitin. | en_GB |
dc.identifier.citation | Vol. 13 (6), article e0198261 | en_GB |
dc.identifier.doi | 10.1371/journal.pone.0198261 | |
dc.identifier.uri | http://hdl.handle.net/10871/33316 | |
dc.language.iso | en | en_GB |
dc.publisher | Public Library of Science | en_GB |
dc.relation.url | https://www.ncbi.nlm.nih.gov/pubmed/29927966 | en_GB |
dc.rights | © 2018 Shankar et al. This is an open
access article distributed under the terms of the
Creative Commons Attribution License, which
permits unrestricted use, distribution, and
reproduction in any medium, provided the original
author and source are credited. | en_GB |
dc.title | Under representation of people with epilepsy and intellectual disability in research. | en_GB |
dc.type | Article | en_GB |
dc.date.available | 2018-06-28T10:43:43Z | |
dc.identifier.issn | 1932-6203 | |
dc.description | This is the final published version. | en_GB |
dc.description | Available from PLoS via the DOI in this record. | en_GB |
dc.identifier.journal | PLoS One | en_GB |