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dc.contributor.authorKandiyali, R
dc.contributor.authorHawton, A
dc.contributor.authorCabral, C
dc.contributor.authorMytton, J
dc.contributor.authorShilling, V
dc.contributor.authorMorris, C
dc.contributor.authorIngram, J
dc.date.accessioned2018-10-23T14:33:29Z
dc.date.issued2018-10-15
dc.description.abstractThis paper considers patient and public involvement (PPI) in health economics research and how this might be facilitated. PPI refers to research carried out 'with' or 'by' members of the public and is now an important aspect of health research policies internationally. Patients and members of the public can be involved in all stages of the research cycle, from establishing whether the topic is important to influencing details of study design, wording of patient-facing documentation and interpretation and dissemination of findings. PPI has become commonplace in health services research. In the context of clinical trials, it has become imperative, with, for example, patients and members of the public informing the selection of outcome measures and recruitment methods, and qualitative research is frequently steered by PPI input regarding the content of interview topic guides and the interpretation of study findings. It is less common for PPI to be explicitly reported in the economic components of health services research. However, we argue that involvement is no less important in this area. The fundamental rationale for involving people in research is that it promotes democratic principles, research quality and relevance to service users. These arguments equally apply to health economics as to other health research disciplines. Our overarching aim in this paper is to show how health economic research might be informed by PPI. We report our experiences of PPI via case studies in child health, reflect on our learnings, and make suggestions for future research practice. Plain Language Summary This paper considers how to involve patients and members of the public in health economics research.Health economists often carry out research into the value for money (sometimes called 'cost effectiveness') of new ways of treating people. This can help in decisions about which treatments are publically funded. In an economic evaluation, the economist identifies and values the key things used to treat someone who is unwell. They also have to measure how unwell that person is and whether their health changes with treatment. They do this by asking them questions about how they rate specific aspects of their health. Economists compare costs and health outcomes of different treatments. Patient and public involvement in health research is really important because the public fund health systems (through taxation in the UK) and benefit from healthcare. This paper shares our ideas on and experiences involving the public in health economic research studies. All our examples come from the involvement of children and/or parents. We think our approaches would also apply to adults.en_GB
dc.description.sponsorshipNo direct funding was received to write this paper; however, the FAST and CHICO studies received funding from the NIHR, and the Parent-to-Parent study received funding from the NIHR Collaboration for Leadership in Applied Health Research and Care of the South West Peninsula (PenCLAHRC) and the charity Cerebra.en_GB
dc.identifier.citationPublished online 15 October 2018en_GB
dc.identifier.doi10.1007/s41669-018-0099-7
dc.identifier.urihttp://hdl.handle.net/10871/34402
dc.language.isoenen_GB
dc.publisherSpringeren_GB
dc.relation.urlhttps://www.ncbi.nlm.nih.gov/pubmed/30324567en_GB
dc.rights© The Author(s) 2018. Open Access. This article is distributed under the terms of the Creative Commons Attribution-NonCommercial 4.0 International License (http://creativecommons.org/licenses/by-nc/4.0/), which permits any noncommercial use, distribution, and reproduction in any medium, provided you give appropriate credit to the original author(s) and the source, provide a link to the Creative Commons license, and indicate if changes were made.en_GB
dc.titleWorking with Patients and Members of the Public: Informing Health Economics in Child Health Researchen_GB
dc.typeArticleen_GB
dc.date.available2018-10-23T14:33:29Z
exeter.place-of-publicationSwitzerlanden_GB
dc.descriptionThis is the final version. Available on open access from Springer via the DOI in this recorden_GB
dc.identifier.journalPharmacoEconomics - Openen_GB


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