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dc.contributor.authorHunt, H
dc.contributor.authorWhear, R
dc.contributor.authorBoddy, K
dc.contributor.authorWakely, L
dc.contributor.authorBethel, A
dc.contributor.authorMorris, C
dc.contributor.authorAbbott, R
dc.contributor.authorProsser, S
dc.contributor.authorCollinson, A
dc.contributor.authorKurinczuk, J
dc.contributor.authorThompson-Coon, J
dc.date.accessioned2019-01-08T13:24:16Z
dc.date.issued2018-10-31
dc.description.abstractBACKGROUND: Parents of babies admitted to neonatal units experience an arduous emotional journey. Feelings of helplessness, fear, sadness, guilt, grief and anger are common. These feelings can lead to anxiety, depression and post-traumatic stress which may persist long after discharge from the unit. Support from a parent with first-hand experience able to empathise with problems and challenges may help. This systematic review will identify quantitative and qualitative evidence to address the role of parent-to-parent support interventions for families of babies cared for in neonatal units, and combine the findings in an integrated synthesis. METHODS: We are working in collaboration with a study-specific Parent Advisory Group (PAG) of parents who have relevant and varied lived experience of having a baby in neonatal care and those who have been involved in providing peer support. With the PAG, we will carry out a systematic review bringing together all existing research on parent-to-parent support for parents of babies cared for in neonatal units. This will be reported in accordance with the Preferred Reporting Items for Systematic Reviews and Meta-Analyses (PRISMA) statement. The protocol has been produced in accordance with the Preferred Reporting Items for Systematic Reviews and Meta-Analyses Protocol extension (PRISMA-P). We have co-produced a plain language protocol summary with the PAG which details the different stages of the project, and this is available via our website ( http://clahrc-peninsula.nihr.ac.uk/research/parent-to-parent-support ) for anyone interested in learning more about the detail of the project. DISCUSSION: All outputs will be available on the NIHR CLAHRC South West Peninsula (PenCLAHRC) website and promoted via PenCLAHRC networks as well as organisations that have been contacted throughout the project. PAG members will be involved in writing and reviewing the academic paper and final report and in co-producing dissemination products such as plain language summaries. The PAG will influence the main conclusions of the systematic review, aid interpretation and help to communicate results in the most appropriate ways. We will hold an impact conference with representatives from neonatal units, national neonatal networks, commissioners of services and parents to discuss what the findings mean for clinical practice and service provision. SYSTEMATIC REVIEW REGISTRATION: PROSPERO CRD42018090569.en_GB
dc.description.sponsorshipNational Institute for Health Research (NIHR)en_GB
dc.identifier.citationVol. 7, article 179en_GB
dc.identifier.doi10.1186/s13643-018-0850-2
dc.identifier.urihttp://hdl.handle.net/10871/35386
dc.language.isoenen_GB
dc.publisherBMCen_GB
dc.relation.urlhttps://www.ncbi.nlm.nih.gov/pubmed/30382886en_GB
dc.rights© The Author(s). 2018. Open Access. This article is distributed under the terms of the Creative Commons Attribution 4.0 International License (http://creativecommons.org/licenses/by/4.0/), which permits unrestricted use, distribution, and reproduction in any medium, provided you give appropriate credit to the original author(s) and the source, provide a link to the Creative Commons license, and indicate if changes were made. The Creative Commons Public Domain Dedication waiver (http://creativecommons.org/publicdomain/zero/1.0/) applies to the data made available in this article, unless otherwise stated.en_GB
dc.subjectNICUen_GB
dc.subjectNNUen_GB
dc.subjectNeonatalen_GB
dc.subjectParent peeren_GB
dc.subjectParent supporten_GB
dc.subjectParent-to-parenten_GB
dc.subjectPrematureen_GB
dc.subjectPretermen_GB
dc.titleParent-to-parent support interventions for parents of babies cared for in a neonatal unit-protocol of a systematic review of qualitative and quantitative evidenceen_GB
dc.typeArticleen_GB
dc.date.available2019-01-08T13:24:16Z
exeter.place-of-publicationEnglanden_GB
dc.descriptionThis is the final version. Available on open access from BMC via the DOI in this recorden_GB
dc.identifier.journalSystematic Reviewsen_GB
dc.rights.urihttp://creativecommons.org/licenses/by/4.0/en_GB
dcterms.dateAccepted2018-10-19
rioxxterms.versionVoRen_GB
rioxxterms.licenseref.startdate2018-10-19
rioxxterms.typeJournal Article/Reviewen_GB
refterms.dateFCD2019-01-08T13:21:31Z
refterms.versionFCDVoR
refterms.dateFOA2019-01-08T13:24:24Z


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© The Author(s). 2018. Open Access.
This article is distributed under the terms of the Creative Commons Attribution 4.0 International License (http://creativecommons.org/licenses/by/4.0/), which permits unrestricted use, distribution, and reproduction in any medium, provided you give appropriate credit to the original author(s) and the source, provide a link to the Creative Commons license, and indicate if changes were made. The Creative Commons Public Domain Dedication waiver (http://creativecommons.org/publicdomain/zero/1.0/) applies to the data made available in this article, unless otherwise stated.
Except where otherwise noted, this item's licence is described as © The Author(s). 2018. Open Access. This article is distributed under the terms of the Creative Commons Attribution 4.0 International License (http://creativecommons.org/licenses/by/4.0/), which permits unrestricted use, distribution, and reproduction in any medium, provided you give appropriate credit to the original author(s) and the source, provide a link to the Creative Commons license, and indicate if changes were made. The Creative Commons Public Domain Dedication waiver (http://creativecommons.org/publicdomain/zero/1.0/) applies to the data made available in this article, unless otherwise stated.