Data curation-research: Practices of data standardization and exploration in a precision medicine database
Tempini, N
Date: 20 December 2020
Article
Journal
New Genetics and Society
Publisher
Taylor & Francis
Publisher DOI
Abstract
Key to precision medicine is the development of expert database projects that gather data,
integrate them in the pre-existing database, and publish the product of their processing for
others to make use of. Increasingly, it is required that data infrastructure managers and
curators pursue and lead research projects on the data so ...
Key to precision medicine is the development of expert database projects that gather data,
integrate them in the pre-existing database, and publish the product of their processing for
others to make use of. Increasingly, it is required that data infrastructure managers and
curators pursue and lead research projects on the data so as to learn about new ways data
could be used or information that could be potentially generated from them. I call these
efforts ‘data curation-research’ and use the case study of COSMIC, the Catalogue of Somatic
Mutations in Cancer, to analyze the contextual factors shaping the science of data curation research.
I build on March’s organizational learning categories of exploitation and exploration to place these
factors within a theory of organizational change and innovation,
and contribute to a richer picture of the social drivers of cancer genomics.
Social and Political Sciences, Philosophy, and Anthropology
Faculty of Humanities, Arts and Social Sciences
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