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Can I access my personal genome? The current legal position in the UK.

dc.contributor.authorKaye, J
dc.contributor.authorKanellopoulou, N
dc.contributor.authorGowans, H
dc.contributor.authorCurren, L
dc.contributor.authorMelham, K
dc.contributor.authorHawkins, Naomi
dc.date.accessioned2014-11-21T15:56:30Z
dc.date.issued2014-10-17
dc.description.abstractThis paper discusses the nature of genomic information, and the moral arguments in support of an individual's right to access it. It analyses the legal avenues an individual might take to access their sequence information. The authors describe the policy implications in this area and conclude that, for now, the law appears to strike an appropriate balance, but new policy will need to be developed to address this issue.en_GB
dc.description.sponsorshipWellcome Trusten_GB
dc.description.sponsorshipNational Institute for Health Research (NIHR)en_GB
dc.description.sponsorshipEconomic and Social Research Council (ESRC)en_GB
dc.identifier.citationVol. 22, Issue 1, pp. 64 - 86en_GB
dc.identifier.doi10.1093/medlaw/fwt027
dc.identifier.grantnumber096599/2/11/Zen_GB
dc.identifier.grantnumberCDGG11a ESRC 07-08en_GB
dc.identifier.urihttp://hdl.handle.net/10871/15907
dc.language.isoenen_GB
dc.publisherOxford University Pressen_GB
dc.relation.urlhttp://www.ncbi.nlm.nih.gov/pubmed/24136352en_GB
dc.rightsThis is an Open Access article distributed under the terms of the Creative Commons Attribution License (http://creativecommons.org/licenses/by/3.0/), which permits unrestricted reuse, distribution, and reproduction in any medium, provided the original work is properly cited.en_GB
dc.subjectDNA sequencingen_GB
dc.subjectbioethicsen_GB
dc.subjectgenetic researchen_GB
dc.subjectgenomeen_GB
dc.subjectresearch ethicsen_GB
dc.subjectresearch findingsen_GB
dc.subjectDatabases, Geneticen_GB
dc.subjectGenetic Privacyen_GB
dc.subjectGenetic Researchen_GB
dc.subjectGenetic Testingen_GB
dc.subjectGenome, Humanen_GB
dc.subjectGreat Britainen_GB
dc.subjectHumansen_GB
dc.subjectPatient Access to Recordsen_GB
dc.titleCan I access my personal genome? The current legal position in the UK.en_GB
dc.typeArticleen_GB
dc.date.available2014-11-21T15:56:30Z
dc.identifier.issn0967-0742
exeter.place-of-publicationEngland
dc.description© The Author 2013. Published by Oxford University Press.en_GB
dc.identifier.eissn1464-3790
dc.identifier.journalMedical Law Reviewen_GB
dc.identifier.pmcidPMC3930166


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